Celine Dion says her new doctor will chronicle her life with stiff-person syndrome and her journey back to performance.

While Celine Dion’s musical career is on pause as she deals with stiff person syndrome, a rare neurological illness, she is documenting her journey in a new documentary called “I Am: Celine Dion” and remains hopeful that she will be able to return to the stage one day.

“This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me,” she wrote in a post on her Instagram account on Tuesday. “As the road to resuming my performing career continues, I have realized how much I have missed being able to see my fans.”

She said that she wants to “document” this portion of her life through her documentary “to raise awareness of this little-known condition and to help others who share this diagnosis.”

Celine Dion says her new doctor will chronicle her life with stiff-person syndrome and her journey back to performance.
LOS ANGELES, CA, JANUARY 13: Celine Dion performs onstage at the the the the the All-Star Lineup Pays Tribute At “Aretha! A GRAMMY Celebration For The Queen Of Soul at the Shrine Auditorium on January 13, 2019 in Los Angeles, California. (Photo by Rich Fury/Getty Images for NARAS)

Dion revealed in December 2022 that she was taking a break from her professional obligations to focus on her health after revealing her stiff-person syndrome diagnosis. At the time, she stated that her health prevented her from singing “the way I’m used to.”

While Dion recorded new music and starred in a film with Priyanka Chopra this year, she said in late May that she “will likely never tour again.”

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According to the National Institute of Neurological Disorders and Stroke, stiff person syndrome is “a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord.”

“She’s doing everything to recover,” Dion’s older sister, Claudette, told Hello! Canada in September. “She’s a strong woman.”

According to the official synopsis, “I Am Celine Dion” will provide viewers with an intimate peek into her life “as she reveals her battle with Stiff Person Syndrome (SPS) and the lengths she has gone to continue performing for her beloved and loyal fans.”

The documentary, which captures more than a year of Dion’s life, including “never-before-seen” private moments, will show the iconic singer navigating “her journey toward living an open and authentic life amidst illness.”

Celine Dion says her new doctor will chronicle her life with stiff-person syndrome and her journey back to performance.

According to the press release, Irene Taylor, an Oscar-winning director, will be in charge of directing “I Am Celine Dion,” which will be available on Prime Video.

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Celine Dion says what is stiff person syndrome and how does it affect people?

Stiff Person Syndrome (SPS) is a rare autoimmune and neurological illness characterized by muscle stiffness and painful spasms that can occur in the torso and limbs. Individual differences in symptom severity and the ability of environmental cues or emotional stress to cause the illness are both possible. SPS patients may also have difficulties walking, an uneven stride, and increased sensitivity to noise, touch, and emotional distress.

The specific etiology of SPS is unknown; however, it is thought to be an autoimmune condition in which the body’s immune system assaults healthy cells, and it affects women more than men. The illness is thought to be caused by a reduction in the neurotransmitter GABA, which controls muscular activity and anxiety. While there is no cure for SPS, medication can help manage symptoms and reduce the progression of the disorder.

What are the symptoms of stiff-person syndrome?

Stiff Person Syndrome (SPS) is an uncommon neurological condition characterized by muscle stiffness and painful spasms that can occur in the trunk and legs. The primary signs of SPS are:
1. Muscle stiffness in the torso and legs.
2. Environmental triggers or emotional stress can cause episodes of violent muscular spasms.
3. Walking is difficult and shaky.
4. Enhanced sensitivity to sound, touch, and emotional suffering.
5. Increased impairment over time, which can result in bent postures and difficulties walking or moving.
6. Symptoms include despair and anxiety, partly due to the unpredictable nature of the disease and reduced levels of the neurotransmitter GABA, which modulates anxiety.

The intensity of symptoms varies by individual, and the illness can cause substantial disability. It is more prevalent in women and commonly associated with other autoimmune illnesses. While there is no cure for SPS, treatment seeks to minimize symptoms while also improving mobility and comfort.

How is stiff-person syndrome different from other neurological disorders?

Stiff Person Syndrome (SPS) is a rare, progressive neurological disorder that is distinct from other neurological conditions in several ways. Here are some key differences:

  1. Muscle Stiffness and Spasms: SPS is characterized by persistent muscle stiffness and excruciating spasms that are susceptible to a variety of stimuli, such as noise or emotional stress. This is a defining feature that sets SPS apart from other neurological disorders.
  2. Sensitivity to Stimuli: Individuals with SPS often experience heightened sensitivity to noise, touch, and emotional distress, which can exacerbate muscle spasms. This heightened sensitivity is not commonly seen in other neurological conditions.
  3. Association with Autoimmune Response: SPS is thought to be an autoimmune illness in which the body’s immune system incorrectly assaults healthy cells. This autoimmune component distinguishes it from most other neurological illnesses.
  4. Gender Predominance: SPS affects twice as many females as males, which distinguishes it from the majority of other neurological illnesses.
  5. Association with Other Autoimmune Diseases: SPS stands out from a multitude of other neurological disorders due to its frequent association with other autoimmune conditions. These conditions include type-I diabetes, thyroiditis, vitiligo, and pernicious anemia.

These differences make Stiff Person Syndrome, a complex neurological disorder, more distinctive.

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